The NIHR Research Centre Lead in The Philippines, Dr Carmela Lapitan, in conversation with UK-based surgeon and PhD fellow, James Glasbey, and CEI Manager, Dr Karolin Kroese.
As outlined in the ‘Background’ video, the study is heavily patient-centered with a major aspect of it being focus groups and one-to-one interviews with stoma patients, informal caregivers, health care providers and staff involved in stoma care services to gather information on experiences, priorities, challenges and coping strategies relating to stoma care. Mela therefore felt it was crucial to involve patients in the design of the study to help highlight barriers to participation and inform the smooth running of focus groups and interviews. Patients being part of the research team: A new concept in The Philippines that turned out to have its challenges and obstacles.
In the next video, Mela outlines the why, how and what of patient involvement with STARFISH.